Would you like to make a difference for current or future family caregivers? Get involved in research, planning and engagement programs.
Caregiver Engagement Program
We are partnering with the BC Ministry of Health’s Patients as Partners Program to expand support for family caregivers and to ensure that their voice is included in health system improvement efforts. The Family Caregiver Engagement Program is designed to expand FCBC’s existing pool of family caregiver volunteers in order to respond to the many opportunities emerging as the Patient and Family Centered care philosophy takes root.
- Support family caregivers to be an effective voice in health improvement efforts
- Promote and support a culture of Patient and Family Centered Health Care
Why do we need to have family caregivers’ voices?
- When both family caregivers and patients are included as partners in care, the patient’s health outcomes are better
- Next to the patient themselves, family caregivers know the person best
- Family caregivers are providing 10 hours of care for every 1 hour provided by the formal health system – it makes sense to include them in all areas of health
What we’re doing:
- Recruiting and orienting family caregivers to participate in engagement opportunities
- Liaising with engagement partners to plan events that take into account the unique challenges caregivers face because of their work schedules, care demands, care recipient needs and geographic locations
- Matching caregivers’ experiences, skills and preferences with the opportunities for engagement, and providing specific information to prepare for each individual request for engagement
- Collaborating with other organizations to avoid duplication, close gaps and streamline efforts
Examples of past engagement opportunities:
- Health Authority community consultations (day long)
- Focus groups (2 hours)
- Interviews (1 hour)
- Meetings (1 hour to 4 hours)
- Responding to online or paper surveys (10-20 minutes)
- Committees (once per month in person or teleconference for a specific term)
Interested in taking part? Contact us for more information.
University of Victoria – Centre on Aging
Are you in a committed relationship with someone diagnosed with Alzheimer’s disease, Parkinson’s disease, OR Dementia with Lewy Bodies?
The UVic Centre on Aging is looking for caregivers of persons diagnosed with Alzheimer’s disease, Parkinson’s disease or Dementia to fill out a questionnaire on the rewards and challenges of care. Please contact Dr. Kaitlyn Roland at 250-853-3679 or email email@example.com for more information.
University of Toronto – Faculty of Medicine
Are you 18+ and providing care to a parent? Do you interact with other caregivers on-line or in-person?
The goal of the study: To learn about the peer support relationship between adult children caregivers who interact online or in person.
Who can participate: Individuals who are: 1) 18 years or older; 2) Helping their mom/dad with any of their usual activities or medications and 3) In contact with other caregivers online or in person.
Your role: To answer an online survey that should take 30-45 minutes to complete. You will be able to start and resume the survey at any time and therefore do not need to finish it all at once. At the end of the survey, you will be invited to participate in an optional 45-60 minute telephone interview. The interview aims to gain more in-depth information about your experiences as a caregiver and the relationship between you and your peers. The interview is optional and you may choose to only complete the survey.
For more information: Contact Marina at 416-978-5694 or firstname.lastname@example.org
Invitation to participate in Assisted Living and Community Health Care research study
What is the study about?
This research study will evaluate the quality of care and social supports for two distinct client populations that receive assisted living services in BC: 1) seniors and 2) individuals with mental health and substance use concerns.
What is the study’s purpose?
The CCPA-BC is a leading public policy voice on seniors’ care and community health care and social services. This research study will provide policy recommendations to the BC government, Ministry of Health, health authorities and assisted living providers intended to improve the quality of care and integration of services.
Who is conducting the research?
This research will be conducted by Andrew Longhurst. Andrew is a Research Associate with the Canadian Centre for Policy Alternatives—BC Office and Researcher & Policy Analyst at the Health Sciences Association of BC (email@example.com).
Are you an assisted living resident, family member of a resident, frontline care provider or assisted living operator or manager? Do you know someone who is?
We would like to talk to you—in a 60- 90 minute interview—about your experience with assisted living in BC, specifically the quality of care and supports. If you know someone who has experience with assisted living, please pass along this information and encourage them to contact Andrew Longhurst at firstname.lastname@example.org. Confidentiality will be provided to all interview participants. If you participate in this research study, your identity will not be revealed. Full confidentiality will be maintained.
How will interview data be used?
If you consent, interviews will be taped, transcribed and may be used to inform the final research report. If you are directly quoted or paraphrased, you will be given a pseudonym and identified as a resident, family member, frontline worker, etc. Your real identity and assisted living residence/employer (if applicable) will remain confidential. The taped interviews will remain confidential and remain solely in the possession of the Andrew Longhurst, the principal investigator. A third-party transcription service may be used to transcribe the interviews. Confidentiality will be maintained throughout this process.
To get involved or for more information contact:
Andrew Longhurst (CCPA-BC Research Associate) at email@example.com or 604-362-6554.
CITED- Radio Documentary
Cited is partering with The Tyee and the CCPA to tell a story about the privatization of elder care in BC. Specifically, what unique challenges come out of privately run long-term care homes: how does it impact the relationship between care aides and residents? How has this model affected your life at work or the daily life of your family member?
To get involved:
Contact Sam Fenn at firstname.lastname@example.org or call at 778.996.1723
Cited is a documentary radio show sponsored by
UBC and by the Social Sciences and Humanities Research Council of Canada.
The program is run out of the Michael Smith Laboratories at the University of British Columbia in Vancouver.
“Researchers from the University of British Columbia are looking for volunteers to participate in a study examining digital storytelling and its effect on caregivers of older adults or older adult caregivers. The study takes place in Vancouver, BC.
We are looking for individuals who:
· are 19 years of age or older;
· are a past or current family caregiver for an older adult OR an older adult who is or was a family caregiver;
· can read, write and speak in English.
If you choose to take part and are eligible to participate:
You will be asked to complete:
· a pre-workshop questionnaire, which we anticipate will take approximately 15 minutes
· and then take part in a Digital Storytelling Program spanning up to 10 weeks (21-25 hours in total).
· After completing the workshop sessions you will be asked to participate in a 15 – 30 minute focus group and complete a post-workshop questionnaire (approximately 15 minutes).
Assessments will take place either:
· in person at GF Strong or Blusson Spinal Cord Centre,
· or in a community center or library that is centrally located (Scheduling based on availability)
For more information, please contact Mary Ellen Johnson at 604-714-4108 or email at email@example.com”